Category: Ehlers Danlos Syndrome

I didn't even know that I had damaged my tailbone but it hurt - it took 13 years to know what was wrong. So, what WAS wrong? And how do I now manage the pain? In 2005, I sat and felt the most...

Can a chronic condition change your personality? Would I have been different had I not been managing chronic conditions? These questions may not seem like they're worth answering because it's all...

I had endometriosis excision surgery one year ago. How has this year of recovery been for me? Do I still experience pain and symptoms related to endometriosis? Did the surgery work? How are my...

I want to meet my doctor at the hospital, but I can't. It's Covid-19 times and I'm stuck. The hospital management thinks, evolves and creates a new online infrastructure that allows us to get a...

I believed I had arthritis when I was a teenager but my GP always said that I'm too young for it. People around me always said it was an old-person's condition. But is that the case? Are we misled?...

Do you have a retirement plan especially if you're battling a chronic condition? I share my fears, and my plan in this podcast - there's now a video version to this too so you can watch, or Listen...