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Category: POTS
The Doctors Who Treat My Ehlers-Danlos Syndrome, POTS & Fibromyalgia
Getting diagnosed for Ehlers-Danlos syndrome, postural orthostatic tachycardia syndrome (POTS) and conditions like fibromyalgia can be such a challenge. After sharing information on the doctors...
6 Things I Didn’t Know About Hypermobile Ehlers-Danlos Syndrome
Having Ehlers-Danlos syndrome means having a complicated condition. I didn't realise how complex it could all get and the extent it can affect an EDSer's existence. If you've been newly diagnosed...
How to Lose Weight After Being Stuck in Bed with a Chronic Illness | Disability
The time has come to lose the extra weight and inches I've gained from having many chronic illnesses, being disabled, having had surgery and not having enough physical activity from being stuck in...
Certain sounds trigger sudden painful reactions in my body, but why? Why am I experiencing sound sensitivity? I'm going to take you through my process of trying to figure this one out. Please...
I didn't even know that I had damaged my tailbone but it hurt - it took 13 years to know what was wrong. So, what WAS wrong? And how do I now manage the pain? In 2005, I sat and felt the most...
The day I was diagnosed with Ehlers-Danlos Syndrome, I was also diagnosed with POTS - Postural Orthostatic Tachycardia Syndrome. I had no idea what EDS was and then there was POTS suddenly added to...