Category: Ehlers Danlos Syndrome

Poetry has become a beautiful medium for me to express the experiences of chronic illness and in general the life lessons learnt from it. I've also been writing and recording spoken word poetry,...

I have neuralgia - I have three types of neuralgia - Trigeminal, Occipital & Glossopharyngeal Neuralgia. It's a struggle but what is neuralgia? What are my experiences with living with neuralgia?...

Getting diagnosed for Ehlers-Danlos syndrome, postural orthostatic tachycardia syndrome (POTS) and conditions like fibromyalgia can be such a challenge. After sharing information on the doctors...

How did I get from having a severe migraine to a CSF leak which then caused brain sagging and intracranial hypotension?! I do my best to explain it all, along with all the technicalities. If you...

I was diagnosed with status migrainosus when head pain landed me in an accident and emergency. I had no clue what status migrainosus was - so I found out. It also made me question if I really did...

I've never really found a face wash I like or one that has worked for my skin too well so I would regularly fall back on body soap which is definitely not great for the face in the long run. But a...